National Down Syndrome Society

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National Down Syndrome Society
NDSS Logo
Abbreviation	NDSS
Formation	1979
Purpose/focus	Disability Advocate
Headquarters	Manhattan, New York City, New York, USA
Official languages	English, Espanol
President	Jon Colman
Affiliations	350
Budget	$2,000,000+
Website	NDSS Official Website

The National Down Syndrome Society (NDSS) is an American organization that offers support to people with Down syndrome, their families, friends, teachers, and coworkers, and educates the general public about Down syndrome. The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

History

When Carson Goodwin was born with Down syndrome in 1978, her parents, Betsy and Barton Goodwin, The Goodwins dedicated themselves to gathering as much information as possible about Down syndrome and creating opportunities for Carson to grow and learn like any other child. They soon discovered that support and resources available to parents of a child with Down syndrome were very limited. Betsy began collaborating with her close friend, Arden Moulton, on an idea to address those pressing needs. Through the efforts of Betsy and Arden, the NDSS gained official nonprofit status in 1979.

Areas of Programming

NDSS focuses on four pillars of programming to enhance the quality of life for people with Down syndrome.

- Their National Policy Center creates systematic change through legislative policy.

- Their National Buddy Walk® Program honors and celebrates individuals with Down syndrome in their communities.

- Their Public Awareness Initiatives bring new and positive presentations of Down syndrome to the public.

- Their Community Programs provide comprehensive and accurate information and resources about Down syndrome.

References

www.ndss.org