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The Spina Bifida Association of America and SHINE (Spina Bifida Hydrocephalus Information Networking Equality) in the UK.

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Q: What groups or organizations sponsor spina bifida?
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Related questions

What are some names of support groups for Spina Bifida?

In my opinion, the best support you can get if you or a family member was born with Spina Bifida is from closed groups on Facebook, just search "Spina Bifida" and you will find them. I am an adult that was born with Spina Bifida and the best support I've found is in closed Facebook groups (they are called closed because they are private groups and what you ask or say does not show up on your friends' timelines).


How many people with Spina Bifida have had children with out Spina Bifida?

My daughter has Spina Bifida and her daughter has Spina Bifida


How do you meet other people with Spina Bifida?

There are Spina Bifida support groups online, see the Related links below for some.


Can someone have spina bifida and not be born with it?

No, spina bifida is a birth defect. Therefore, a person has to be born with spina bifida to have it.


Does spina bifida occur only in certain ethnic groups?

No, it affects all ethnic groups.


Is Nuera another name for Spina Bifida?

No, "Nuera" is not another name for Spina Bifida. Myelomeningocele is another name for Spina Bifida.


How did Spina Bifida get its name?

Spina Bifida is Latin for "split spine".


What illness is Chris Farlowe suffering from?

Spina bifida


Why did they name Spina Bifida?

Spina is Latin for "spine" and Bifida is Latin for "split" or "open" and that is exactly what Spina Bifida is, an opening or split in the spine.


What is Spina Bifida ICD-9 code?

Spina bifida's ICD-9 code is 741 Spina bifida occulta's ICD-9 code is 756.17


What is spina bifida cystica?

One types is spina bifida cystica or spina bifida aperta, which involves a sac filled with spinal contents along the spine.


Can you have spina bifida in the C1 vertebrae?

Yes you can. Spina Bifida at C1 is called spondyloschisis.