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I have done research and was told the average age of diagnoses is 27. People are known to have it from birth. Ive just found out my 9 1/2 YEAR OLD daughter has Arnold chiari malformation which she was undianoses for 5 years, at the age of 4 i noticed her having bad days that always came with vomiting , just glad we had a mri.

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13y ago

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