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People, mostly males, has barth syndrome. Barth Syndrome affected 200,000 male infants.

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People, mostly males, has barth syndrome. Barth Syndrome affected 200,000 male infants.

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There appears to be only one special interest group that has its focus on Barth syndrome--Barth Syndrome Foundation, Inc. The website for this non-profit organization is: www.barthsyndrome.org . There are several international affiliates of the BSF: The Barth Syndrome Trust (UK & Europe), Barth Syndrome Foundation of Canada, and Barth Trust of South Africa.

Sincerely,

Matt Toth

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After the researcher Dr. Peter Barth who established the inheritance of this disease.

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It is a genetically-linked cardiac disease

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Barth's Syndrome is not something you get from a virus or a bacteria. It is genetic, on the X chromozome. It means that a women is mostly only a carrier, and when a carrier woman marries a amn, 50% of their boys will have Barth's Syndrome and 50% of their girls will be carriers. All the other boys and girls will be healthy. Have good health, harhanegev@gmail.com

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