As of 1990, 65 patients had been reported in the literature, with no sex or ethnic preference notable.
from http://en.wikipedia.org/wiki/Freeman-Sheldon_syndrome
The population prevalence of Freeman-Sheldon syndrome (FSS) and number of cases diagnosed is unknown. The reason is partly that FSS really is a spectrum of related distal arthrogryposes.
from http://clinmedsurgresone.blogspot.com/