Get to a doctor who specializes in this field.

There are not many doctors who are studying this post injury field of medicine who are experts.

Ask questions, not any spine doctor studies this injury.

I am writing a book about this diagnosis.

My husband has this injury and has had it since the Gulf War in the nineties.

betty zuspann@yahoo.com

Sometimes CSF (Cerebral Spinal Fluid) is squeezed downward, forced into the spinal cord itself where this fluid does not belong, creating the long blister-like syrinx of syringomyelia [Ed Note: the actual mechanism underlying syrinx formation is not well understood]. Occasionally, the syrinx will form in the central canal of the cord, causing a dilation of the canal known as hydromyelia. The combination of both of these is sometimes termed syringohydromyelia.

Am looking for Arnold Chiari 1 malformation, but the doctor said there is no sign of cysts....was not what l wanted them to look for?

My 9 year old granddaughter has been disgnosed with AC1M, and we have alot of family members with brian problems, like cysts and hydrocephalus etc. And now the 9 year old has got a hydromyelia on her spine.

Just need some answers to see where this all came from...l certainly have a lot of sypmtoms for years, without knowing about the condition.

Can anyone answer my question, l wuld be most grateful.

Thanks so much from Chriskeykey