Marie Joubert..

Approximately 500 - 600 people in the word have Joubert Syndrome.

Life expectancy varies depending on the severity of Joubert syndrome and associated complications. Some individuals may have a normal lifespan, while others may have a shortened life expectancy due to respiratory or kidney issues, among other complications. It is essential for individuals with Joubert syndrome to have regular medical care and monitoring to address any potential health concerns.

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rare genetic disorter that affects the area of the brain that controlls balance and coordination