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Ehlers Danlos Syndrome is considered a "rare disease" by the National Institutes of Health and other health and medical organizations. Although there are few specific guidelines about what qualifies as a rare disease, the Rare Disease Act of 2002 defines a rare disease as one having fewer than 200,000 confirmed cases in the U.S., or about 1 in 1500 people. Unfortunately, actual figures are impossible to know, simply because the condition is so unusual that many cases might go undiagnosed.
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Who are Ehlers-Danlos syndromes named for?
Dr. Ehlers and Dr. Danlos
What are the Ehlers-Danlos syndromes?
The Ehlers-Danlos syndromes (EDS) refer to a group of inherited disorders that affect collagen structure and function
How common are Ehlers-Danlos syndromes?
Today, according to the Ehlers-Danlos National Foundation, one in 5,000 to one in 10,000 people are affected by some form of EDS
When were Ehlers-Danlos syndromes originally found?
EDS was originally described by Dr. Van Meekeren in 1682
Who discovered ehlers-danlos syndrome?
Ehlers-Danlos Syndrome was discovered by Edvard L. Ehlers, a Danish dermatologist who first discovered the disease in 1901. Henri-Alexandre Danlos, a French dermatologist published his own description of the disease in 1908.
What is ehlers danlos 3?
Ehlers-Danlos type 3 is the hypermobility form of the Ehlers-Danlos Syndrome. Affects 1 in 10,000 to 15,000 and is caused by an autosomal dominant or autosomal recessive mechanism. Extreme flexibility is the hallmark of this type. It is one of the most surviable types of EDS.
Where is the Ehlers-Danlos Support Group-UK?
Farnham, Surrey
When was Ehlers-Danlos Syndrome identified?
Hello, I see you are asking "What is ehlers danlos syndrome?" Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. For more information, you can visit this URL - skincarehealthcenter. com/condition/ehlers-danlos-syndrome/c/12004
Is there any treatment for ehlers-danlos syndrome?
There is no specific treatment for Ehlers-Danlos Syndrome beyond pain management. For some individuals, protective bracing of limbs and very gentle physical therapy can be effective.
Do growing pains feel like your bones are coming apart?
No. But ehlers-danlos does.
What are the symptoms of Ehlers Danlos Syndrome?
According to the Mayo Clinic there are a number of things that can be considered symptoms of Ehlers Danlos Syndrome. Some of these symptoms are stretchy and fragile skin, overly flexible joints, and fatty lumps at pressure points.
How is Ehlers-Danlos Syndrome divided?
classical, hypermobility, vascular, kyphoscoliosis, arthrochalasia, and dermatosparaxis
