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There is no Cure for Nemaline Myopathy to this day. In minor cases of the disease, a proper diet, posture, and physical activity can keep you from having an abnormally low weight and muscle mass, and help prevent scoliosis, a common side effect. In more severe cases, your doctor may suggest you have a steroid injection to help counter-act the muscle weakness. "Treatments" can vary from person to person, so consult your doctor.

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Q: Is there any treatment for nemaline rod myopathy?
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What causes nemaline rod myopathy?

Nemaline myopathy is caused by alterations in genes that affect filament proteins. When the filament proteins aren't working, muscles can't contract and there is a subsequent loss of tone and strength.


Which disorders are classified as subtypes of congenital myopathy?

Four distinct disorders are classified as CMs: central core disease, nemaline rod myopathy, centronuclear (myotubular) myopathy, and multicore myopathy.


What is the prevalence of myopathy worldwide?

Worldwide, CMs account for about 14% of all myopathies. Central core disease is 16% of cases; nemaline rod myopathy is 20%; centronuclear myopathy is 14%; and multicore myopathy is 10%.


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