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The prognosis for this disorder varies according to its specific type and how it has progresses. While some cases of this disorder are mild and progress slowly, other cases can be more severe and have a rapid progression. Some people can live many years with this disease, while others with the severe form can die in infancy or during childhood. This disorder is a genetic disease that in some people manifests in childhood. However, this disorder also can affect a person later in life.

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