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What percentage of Marfan syndrome sufferers eventually develop cardiac complications?
About 90% of Marfan patients will develop cardiac complications.
How many Marfan syndrome sufferers develop ectopia lentis?
Between 50 and 80% of Marfan patients have dislocated lenses.
What is the racial breakdown of Marfan syndrome sufferers?
Marfan syndrome affects males and females equally, and appears to be distributed equally among all races and ethnic groups.
Why do Marfan syndrome sufferers develop longer bones?
Marfan syndrome causes an increase in the length of the patient's bones, with decreased support from the ligaments that hold the bones together.
Why should Marfan syndrome sufferers never smoke?
Smoking is particularly harmful for Marfan patients because it increases their risk of emphysema.
Does Marfan syndrome have a treatment?
While there is no cure for Marfan Syndrome (because it is a genetic disorder), there are ranges of treatment options can decrease (and even sometimes prevent) complications.
What part of the heart is most likely to develop infection in Marfan syndrome sufferers?
In patients with Marfan, it is the abnormal mitral valve that is most likely to become infected.
How does pectus carinatum impact Marfan syndrome sufferers?
Although pectus carinatum does not cause breathing difficulties, it can cause embarassment about appearance.
Are there any treatments for marfan syndrome?
While there is no cure for Marfan Syndrome (because it is a genetic disorder), there are ranges of treatment options can decrease (and even sometimes prevent) complications.
Is gene therapy a possiblilty for marfan's syndrome?
Gene therapy is being explored as a potential treatment for Marfan syndrome, as it has the potential to correct the underlying genetic mutation that causes the condition. However, further research is needed to determine its safety and efficacy before it can become a standard treatment option for Marfan syndrome.
Can people with Marfan syndrome fly in an airplane?
Yes. A person with Marfan syndrome should have no problem flying in a commercial aircraft. Flights in an unpressurized aircraft are not recommended though, because the changes in altitude can cause a collapsed lung (pneumothorax), a particular risk for people with Marfan syndrome.
What are the chances of getting marfan syndrome?
Marfan syndrome is found in 1 in every 5,000 - 10,000 births. If one of your parents has Marfan syndrome, you have a 50% chance of having Marfan syndrome.
