cause no ones knows about it
CEP is also called Gunther's disease, erythropoietic porphyria, congenital porphyria, congenital hematoporphyria, and erythropoietic uroporphyria.
from a rare disease called porphyria
from a rare disease called porphyria
Porphyria is not an autoimmune disease. Although, signs and symptoms of the disease mimic lupus, which is an autoimmune disease. Autoimmune diseases are based on the immune system not being able to distinguish between its own cells and cells that are foreign in nature. On the other hand, porphyria is based on a malformation of heme precursors, called porphyrins. The name porphyria comes from Greek porphyra, which means purple pigment, and references the purple color of the urine seen in some porphyria cases.
when you blister in the sunlight it is called cutaneous porphyria. its supposed to be a very rare disease so not many people get this disease
i believe they have a skin disease called Porphyria Cutanea Tarda
Unfortunetly no...but there is a disease called Porphyria, for more information on the disease go to.....http://www.geocities.com/researchguide/drkporphyria.html,
porphyria
porphyria
Swedish porphyria, pyrroloporphyria, and intermittent acute porphyria.
If by this question you're making reference to the Robert Browning poem "Porphyria's Lover" the poem's speaker strangled Porphyria with her hair. If you are actually asking about a speech someone has perhaps made on the disease called porphyria, I have no idea as to how one might cure oneself of it and thus tender instead my sincere apologies.
Yes there is, but due to difficulty of diagnosing the disease and rarity of the disease some cases may be misdiagnosed already, And i dont know doctors here in Philippines have specialized in porphyria even hepatologist here had difficult time diagnosing porphyria, even medication for porphyria are not available in the philippine, Sad to say