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I don't have bone disease, but the lead singer of the band Trust Company's wife has a rare form of Arthritis, that may be similar to bone disease. The band Flyleaf has a song called "Fully Alive", and it's about her, and how she suffered. Her name is Layla Palmer, if you would like to search for yourself. C=

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15y ago
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11y ago

a person can live up to 5-6 months.

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Q: How long can a person live with brittle bone disease?
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What is the medical term meaning bones like glass?

Osteogenesis imperfecta (oste = bone + genesis = to make ++ im = not + perfecta = complete) is also know as "Brittle Bone Disease", "Lobstein Syndrome" and "Glass Bone Disease". It is a genetic disorder present in 1 out of every 20,000 live births. In the USA, there are approximately 20,000 to 50,000 people receiving treatment for this disease.


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