Elizabeth Taylor may have had it. Others include Myleene Klass, Russell Kane and Cherrylee Houston, all of Britain.
Ehlers Danlos Syndrome is not a terminal disease, but an inherited disorder of the connective tissue throughout the body. Although individuals with EDS may experience chronic pain and disability, their life expectancy is the same as anyone's.
Today, according to the Ehlers-Danlos National Foundation, one in 5,000 to one in 10,000 people are affected by some form of EDS
Ehlers-Danlos syndrome can cause sensitive/bleeding gums as well as loose teeth. TMJ, which is a condition characterized by a clicking noise in the jaw, is also common among people with EDS. The jaw may also be easily dislocated and painful. There is also evidence that it can cause an increased rate of cavities.
Working as a contortionisAlso as skin stretchers (http://www.youtube.com/watch?v=pEwIBS-A21M)
Although it is difficult to estimate the overall frequency of Ehlers-Danlos syndrome, the combined prevalence of all types of this condition may be about 1 in 5,000 individuals worldwide. The hypermobility and classic forms are most common; the hypermobility type may affect as many as 1 in 10,000 to 15,000 people, while the classic type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are very rare. About 30 cases of the arthrochalasia type and fewer than 60 cases of the kyphoscoliosis type have been reported worldwide. About a dozen infants and children with the dermatosparaxis type have been described. The vascular type is also rare; estimates vary widely, but the condition may affect about 1 in 250,000 people.
Ehlers-Danlos syndrome (EDS) is a group of genetic connective tissue disorders that affect the body's ability to produce collagen. It is estimated to affect about 1 in 5,000 people worldwide. EDS can cause a range of symptoms including joint hypermobility, skin hyperextensibility, and tissue fragility. The impact of EDS can vary from mild to severe, affecting a person's quality of life and daily functioning. Early diagnosis and management by healthcare professionals are important in improving outcomes for individuals with EDS.
Ehlers Danlos Syndrome is considered a "rare disease" by the National Institutes of Health and other health and medical organizations. Although there are few specific guidelines about what qualifies as a rare disease, the Rare Disease Act of 2002 defines a rare disease as one having fewer than 200,000 confirmed cases in the U.S., or about 1 in 1500 people. Unfortunately, actual figures are impossible to know, simply because the condition is so unusual that many cases might go undiagnosed.
According to the 2010 Census, the estimated population of the US is currently 310,594,000 people.Ehlers-Danlos Syndrome incidence varies based on the type:Hypermobility type: affects about 1 in 10,000 to 15,000Classic type: affects about 1 in 20,000 to 50,000Vascular type: affects about 1 in 100,000 to 250,000Other types: about 100 cases identified, total, ever.Based on these, the US prevalence by type would be:Hypermobility type: 20,706 to 31,059 peopleClassic type: 6,211 to 15,529 peopleVascular type: 1,242 to 3,105 peopleOther types: negligible, by comparison (but add 100 to the totals below for a rough guess)This gives a total of about 28,159 to 49,693 people who have EDS in the US.
It is possible that they may have a connective tissue disorder such as Ehlers-danlos syndrome or Marfan syndrome. People with such disorders have issues with collagen production which can lead to hyperelastic ligaments and loose joints. Subluxations and dislocations are a hallmark of these disorders.
whos famous and ha usher syndrome
Nope. Not all people with hyperflexibility have EDS. EDS is rare, while hyperflexibility is relatively more common.
A small fraction of the population has Asperger's Syndrome. It is likely that some of these people would become famous. People with Asperger's Syndrome can excel in their special interest areas and thus can become famous in those areas. There are famous historical people who are speculated to have Asperger's Syndrome because of a few traits known about them. They did not necessarily have Asperger's Syndrome.