It depends on what form, your age, your symptoms, your treatment, and, of course, a good doctor.
Since mastocytosis is uncommon, many doctors have to study up on the latest information and treatments.
The cause of mastocytosis is unknown.
Mastocytosis comes in three forms.
The prognosis for systemic mastocytosis varies depending on the subtype and individual characteristics of the disease. Patients with aggressive forms of systemic mastocytosis may have a poorer prognosis compared to those with indolent forms. Regular monitoring and appropriate management by a healthcare team familiar with the condition can help improve outcomes.
Yes I am familiar with mastocytosis. Val walusia@yahoo.com
People with systemic mastocytosis have bone and joint pain.
No. There is a rare form of leukemia which is caused by systemic mastocytosis but most of us with the disease will not get it.
Many patients with systemic mastocytosis also develop urticaria pigmentosa.
Yes, I am sure thre are some which last as long as a chronic systemic mastocytosis
I believe it does in mine.
systemic mastocytosis is diagnosed via bone marrow biopsy. If mast cells are found in the bone marrow and you have another symptom that fits the criteria then you will be diagnosed with systemic mastocytosis. You can read more about it at www.tmsforacure.org.
A biopsy of the skin patches aids diagnosis. An elevated level of histamine in the urine or blood is also indicative of mastocytosis.
I believe it is myeloid.