My daughter was diagnosed with Dandy Walker syndrome when she was 5. She is now a young woman of 36. Her shunt has been replaced once since the first one. And has borne 6 children!
There are no clinical trials for Dandy-Walker syndrome
The condition is named for doctors Walter E. Dandy and Arthur E. Walker
Walter E. Dandy and Arthur E. Walker described the signs and symptoms of the condition in the early 1900s
Apple Valley, MN
Dandy-Walker syndrome refers to a group of specific, congenital (present at birth) brain malformations, and is a common cause of hydrocephalus (increased fluid in the brain)
Prognosis for DWM varies anywhere from excellent to fatal
Prognosis for DWM varies anywhere from excellent to fatal
a congenital brain malformation involving the cerebellum and the fluid filled spaces around it. A key feature of this syndrome is the partial or even complete absence of the part of the brain located between the two cerebellar hemispheres (cerebellar vermis). The Dandy-Walker complex is a genetically sporadic disorder that occurs one in every 25,000 live births, mostly in females. http://en.wikipedia.org/wiki/Dandy-Walker_syndrome
Treatment for Dandy-Walker syndrome typically involves managing symptoms and complications such as hydrocephalus with shunt placement, developmental delays with early intervention services, physical or speech therapy, and monitoring for other associated conditions. In some cases, surgery may be necessary to address specific complications related to the condition.
In infants, symptoms can include irritability, seizures , vomiting, abnormal breathing, nystagmus (jerky eye movements), and slow motor development
The true cause of DWM is unknown. However, the components of the malformation seem to be related to a disruption in development of the middle portion of the lower part of the brain in the embryonic stage
DA syndrome, or Dandy-Walker syndrome, is a rare congenital brain malformation that affects the cerebellum, the area at the back of the brain that controls movement and coordination. It is characterized by the formation of a cyst in the back of the brain and can cause developmental delays, intellectual disability, and problems with movement. Treatment usually involves managing symptoms and providing supportive care.