What cant you do with Juvenile Myoclonic Epilepsy?

Answer 1

Being someone with JME, I can answer this. You can do almost everything an average, non-epileptic person can do. Things you should never do with JME include but are not limited to:

• If you are photosensitive, interacting with strobe lights (i.e. looking at them, turning them on, ect)
• You shouldn't drive if you've just recently had a seizure. Most states have a law about how long, so if varies for how long
• You should not drink a lot of alcohol. Alcohol is a huge trigger for seizures, along with being overtired and stressed
• Sometimes, sudden noises that are very loud or put me into shock are dangerous; i've never had a seizure from one but they could be a trigger.
• Avoid any amusement park rides that have an epilepsy warning.
• If you are currently in school or work at a school, make an arrangement with the guidance councilor and or nurse to have permission to get outside ahead of time. Fire alarms often have strobes and loud noises, so they can very easily cause a seizure.
• If you see an ambulance, fire truck, or police car, look away. They can trigger seizures easily from the big flashing lights.
• Try to use the buddy system as often as possible. Never swim alone, drive alone, or shower with no one else in the house. If you have a seizure whilst doing one of those things alone, you could very easily get injured or die.
• Before playing a video game, going to a party, seeing a movie/play, or anything of that sort, confirm that there are no strobe lights.
• You should probably get a blue tooth for your phone or use speaker as much as you can because the brain waves can actually be messed up by putting the phone directly towards your ear.

I hope this helps!