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As I understand it, and I am not a doctor, it is severe scarring from endometriosis that leads to a hole in the uterus. At least this is how it was explained to me when I was diagnosed with it.

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Not quite.

There is NO hole in your uterus.

In Allen-Masters, you have broken the tissue (think of it like skin) that stabilizes your uterus and holds it in one place in your pelvis. Without that tissue holding it in place, your lower uterus (and your cervix and vagina below the uterus) can wiggle around as you move while the rest of the uterus is fixed. This stretching and jolting of the cervix hurts!

See this drawing to get an idea of what your uterus looks like.

http://en.wikipedia.org/wiki/File:Gray1161.png

See your uterus -- that big ball in the center that's sitting on the vagina (which looks like a tube)? Now see the "Broad ligament" on either side that looks like its taping the uterus in place? Well imagine a great big hole in that bottom part of that ligament. The uterus is no longer taped down and it moves.

Holes in the ligament usually come from surgical trauma or old wounds. You can easily break the ligament from delivery or, very rarely, from induced abortion (especially if incompetent/unskilled person filled the vagina with too much gauze after the procedure). A very similar set of symptoms can come from endometriosis.

So to even consider Allen-masters as a diagnosis, you need (1) an overly mobile cervix, (2) A uterus that has lost its support and is pointing the wrong direction, and it helps to have (3) a history of trauma to the pelvis -- by which I mean childbirth etc. Some people would say that the damage caused by endometriosis is close enough to lump it in as trauma to the pelvis.

Symptoms are:

1. Long-lasting pelvic pain

2. Menstrual changes of many kinds

3. Pain with sex

**Note that not EVERYONE with these symptoms has Allen-masters. These are VERY VERY COMMON symptoms in many diseases. This disease is rare.

You can try to treat it surgically. Its a difficult fix.

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14y ago

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