What is the longest a child has survived with tay sachs?

Answer 1

Tay-Sachs disease is a genetic disorder that typically leads to severe neurological decline and is usually fatal in early childhood, often by age 4 or 5. However, some individuals with atypical forms of the disease, such as late-onset Tay-Sachs, may survive into their teenage years or even adulthood. The longest reported survival for a child with classic Tay-Sachs is around 15 years, but such cases are extremely rare. The prognosis largely depends on the type and severity of the disease.