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The quality of life for a person with hemophilia has grown by leaps and bounds throughout the past 50 or so years. Severe hemophiliacs for example that were born in the 30s often died before the age of 20 and would have many deformed joints preventing them from enjoying many things.
As treatments improved, bleeding disorders became a chronic condition and life expectancy became almost the same as the rest of the population. Because the treatment was only given when the individual already had a bleeding episode, joint damage and deformities were common and the patients had to spend a good deal of time in the hospital.
In the late 80s and early 90s, as treatment became even better and the extensive joint damage was lessoning, diseases contaminated the blood supply. The diagnosis of hemophilia was complicated with several other issues that had the capacity of greatly diminishing their quality of life at he same time lowering the life expectancies never-mind the hemophilia.
Children born from the mid 90s to present have seen a new horizon. The treatments for this group of hemophiliacs has become safe by all estimations, free of disease and corrects the bleeding problem quickly. Other than having infusions of IV push (which they can do in their own home in about 15-20 minutes) these individuals would not have any identifier as being different from anyone else. Their quality of life still depends on many factors, but hemophilia is not one of the major players.
What else can I help you with?
How many people get hemophilia a year?
You have to be born with hemophilia, it is not something people can "catch".
How long is a life span if you have hemophilia?
About 41
What is the life expectancy of people with hemophilia?
It depends on the severity, the life style, and the level of medical care. Males can live into their seventies, but the average is much lower ... mid-thirties is common. Females (very rare) almost never live past their teens.
Can you develop hemophilia later in life?
Yes, it is possible to develop hemophilia later in life, although it is rare. Acquired hemophilia can occur in adults due to certain medical conditions or medications that interfere with the body's ability to clot blood.
Explain why hemophilia is a serious disorder?
This question is a bit ambiguous to say the least. The most clear cut and simplified answer I can offer is; Hemophilia causes in affected individual's blood to not clot properly and often exacerbates wounds and injuries making them several times more problematic. Minor trauma to locations such as the head, neck, chest, or back can develop into life threatening situations if the individual is not treated. Treatment for hemophilia is in itself problematic due to the financial burden it enparts on the individual. Hemophilia treatment costs an average of $250,000 per year for each person with hemophilia in the United States. Maintaining appropriate medical coverage is of the highest importance. The secondary impacts of hemophilia are no lighter than the disorder itself. Hemophilia can also greatly skew the social, physical and phycological state of the individual if adequate treatment is not provided. Overall quality of life can be dramatically altered.
Can people with hemophilia live on their own?
Yes of course, people with hemophilia live with it there whole lives so they learn to be very cautious.
When does hemophilia occurs?
Traditional Hemophilia is present from birth and throughout the individual's life. This is because the disorder is genetically linked and genetics are pretty much set at the time of conception. Acquired Hemophilia, which is much more rare, can begin at pretty much any stage of an individual's life. While being more common in older people than younger, any person on certain medications, people with liver disease, and a handful of other situations can develop acquired hemophilia. (Acquired hemophilia is not inherited.)
What kinds of people have more of a chance of getting hemophilia?
Hemophilia is a genetic disease, therefore people who have ancestors who were hemophiliacs have a greater chance of getting it.
What is an inherited abnormality that causes a deficiency of a specific clotting factor resulting in a reduced ablitity to clot blood?
Hemophilia is a bleeding disorder that slows down the blood clotting process. People who have hemophilia often have longer bleeding after an injury or surgery. People who have severe hemophilia have spontaneous bleeding into the joints and muscles. Hemophilia occurs more commonly in males than in females.The two most common types of hemophilia are hemophilia A (also known as classic hemophilia) and hemophilia B (also known as Christmas disease). People who have hemophilia A have low levels of a blood clotting factor called factor eight (FVIII). People who have hemophilia B have low levels of factor nine (FIX).The two types of hemophilia are caused by permanent gene changes (mutations) in different genes.
What percent of peoplehave hemophilia?
Hemophilia affects approximately 1 in 10,000 people. The percentage is then approximately 0.01%.
Are people with Hemophilia prevented of getting Malaria?
No, hemophilia does not confer an advantage against malaria. People with sickle-cell anemia do have an immunity, of sorts.
What happens if you have hemophilia over time?
Over time, individuals with hemophilia may experience recurrent bleeding episodes, which can lead to joint damage, chronic pain, and reduced mobility due to hemarthrosis (bleeding into joints). They are also at increased risk for life-threatening bleeding after injuries or surgeries. If not effectively managed with factor replacement therapies, hemophilia can significantly impact overall health and quality of life. Regular medical care and monitoring are essential to mitigate these risks.
