As it is one of the most varied genetic disorders person to person, you can never say. How ever alot of people live a long and healthy life with nf, as i have :)
http://en.wikipedia.org/wiki/Neurofibromatosis
Mony Yassir _degrassi gillian andersond brother
Neurofibromatosis is usually diagnosed when the patient has 10 or more cafe-au-lait spots.
Yes, in Dallas, Texas it is called the NSG (Neurofibromatosis Support Group)
People who have NF1 may have very few neurofibromas, or they may have thousands throughout their bodies
I found this useful link http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm
as long as people do.
If this means stories about people suffering from neurofibromatosis (NF), the Neurofibromatosis Clinics Association provides a site. A link to their website is provided below. The phrase "NF stories" entered at Google will return other sites as well.
i have it and i see an opthomolist a neurologist a neuro-oncologist a endocrinologist and a genetics doctor
They can live nearly or as long as other people.
Neurofibromatosis 1 hyperpigmented macules (cafe au lait spots) nerve tumors types: cutaneous, subcutaneous and plexiform neurofibromas Optical tumors optic pathway gliomas and Lisch nodules (bumps on iris of the eye) Bony abnomralities dysplasias (malformations) of the eye socket, vertebrae Thinning of the long bone cortex Scoliosis can occur as well learning deficits yet large head size Increased rick of non nervous system cancers Neurofibromatosis 2 generally just schwannomas, meningomas and the occasional cataracts. Also they are both affected by different chromosomes... patients with NF1 has a mutation on the long arm of chromosome 17 while neurofibromatosis 2 has a mutation on chromosome 22.
did people live with that all time