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If your child has Retinitis Pigmentosa what are some precautions to take?
Wiki User
∙ 12y ago
Those suffering from RP can be most readily identified by the symptoms. The field of vision shrinks, a person develops a difficulty reading or seeing detailed images and occasionally becomes clumsy.
Optometrists can use a variety of different testing mechanisms to test for RP.
These include a simple eye chart test, examination of the retina or by conducting an ultrasound on the eye's internal structure itself.
Symptoms and Treatment of RPSpecifically, retinas pigmentosa causes the destruction of the rod and cone interaction in the eye. Cell death, otherwise known as apoptosis, occurs within the photoreceptors of the rod or cones, causing a loss in night vision at the minimum and full blindness in acute patients.
Treatment for this disorder is limited based on the level of scientific research available. Doctors are limited to analyzing the age and history of the patient and make a determination of how long the disease will take to fully manifest. The main source of treatment is simply protecting the retina using sunglasses with UV protection.
Wiki User
∙ 12y ago
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How long do you keep your vision with retinitis pigmentosa?
Retinitis pigmentosa treatmentRetinitis Pigmentosa treatment. As human beings, there is very little more universally feared than the dark, and few disabilities more frightening than blindness which would leave us trapped in it. Retinitis pigmentosa is a condition which, to many people, might sound like a nightmare. Retinitis pigmentosa refers to a group of genetic conditions in which the eye progressively degenerates over time. The first symptoms of retinitis pigmentosa are night blindness. This night blindness worsens over time, eventually developing into tunnel vision which little by little narrows the sufferer's peripheral vision until finally they become legally and perhaps totally blind. There is not yet a viable Retinitis Pigmentosa treatmentProgression is different in each case of retinitis pigmentosa. The night blindness phase of the disease can proceed tunnel vision by years or even decades, and many people with retinitis pigmentosa do not legally go blind until their forties or fifties. Some never retain some level of vision throughout their lives. At the same time, others may go blind as early as during childhood.Retinitis Pigmentosa diagnosis come as a fearful shock to some people, which is why retinitis pigmentosa treatments are so important.Since time out of mind, people have struggled to treat the diseases around them. They have relied on everything from superstition, prayer, spells and religious chants to herbal remedies, surgeries and medicines, some of which are still in use today. Unfortunately for people before the modern era, there was very little to be done for loss of sight. Our ancestors had very few options in terms of Retinitis Pigmentosa treatment.Retinitis pigmentosa is caused by abnormalities in the receptors in the eye, the rods and cones which allow us to see color, light and movement. As these abnormalities increase over time, the sufferer's eyesight diminishes. There was very little for even our grandfathers and grandmothers to do when faced with this sort of disease. It has only been recently that our understanding of how the eye works, our understanding of how the body as a whole operates, and our technology has reached a point where retinitis pigmentosa treatments have become something of a reality and moved out of the realms of witchcraft and hope.Retinitis pigmentosa treatments are still relatively few. There is no true cure for retinitis pigmentosa, only treatments which may help to slow the progression of this degenerative disease.Among the first Retinitis Pigmentosa treatment options for people diagnosed with retinitis pigmentosa are medications and supplements. For example, vitamin A therapies can support eye health and slow the progression of this disease. People who receive these should have their liver enzymes checked annually, since in too great of doses, vitamin A can become toxic to the system. Other retinitis pigmentosa treatment options include omega-3 polyunsaturated fatty acid and antioxidant, docosahexaenoic acid, acetazolamide, lutein, and calcium blockers.
What type of disease is retinitis pigmentosa?
Retinitis pigmentosa is an inherited, degenerative eye disease and is a form of retinal dystrophy. It is also an unpredictable, unstable disease, meaning that some people have symptoms (vision impairment, blindness) from birth, while others don't get symptoms till much later in life.
Religious groups affected by retinitis pigmentosa?
Im not sure about that one . Would love to know the answer to that great question. I wouldn't put it past some religious groups who are not into dissabilities
What is the Age of onset of classical retinitis pigmentosa?
Cure Retinitis PigmentosaTreatments for RP in general Worldwide there are various treatments suggested by the medical world but none scientifically proves any solid results. The general idea amongst ophthalmologists is that there is no cure for Retinitis Pigmentosa. Proposed treatments go from a vitamin based medication to avoiding strong day light, to ozone or electro-stimulation. The truth is that some treatments do actually have certain effects. They tend to slow down the progress of the disease. But there is no real over all treatment for patients. All these treatments are a strain on the patients already hard every day life and in the end bring no solution.Since the early 50ies the Cuban Doctor Orfilio Pelaez Molina dedicated a life time of medical research to the disease Retinitis Pigmentosa. As a young doctor he was angered when a good friend of his was diagnosed with RP and the local doctor simply said there was nothing he could do: his friend would become gradually blind.
Can I still drive with Retinitis Pigmentosa?
Retinitis Pigmentosa affects your vision. In the initial stages, you may be able to drive but as the disease progresses, it is not advised. The Ayurvedic treatment from Sanjeevan Netralaya is known to be the best for RP and is very effective in reversing the effects of the disease. Our doctors take the time to study and understand every patient before prescribing medication because every case of RP is unique. Sanjeevan Netralaya’s Advanced Ayurvedic Eye Care has helped over 6 lakh patients across India in effectively reversing Retinitis Pigmentosa without the use of injections and heavy medications that cause harmful and painful side effects
Retinitis pigmentosa has an earlier and more serious effect on rod cells or on cone cells?
Retinitis Pigmentosa or RP, is a general name given to several similar conditions that result in the slow, progressive loss of photoreceptors. There are many different forms of RP, but the most typical forms effect the rod cells - those used for night and peripheral vision - first and as the disease progresses the cones - centeral acuity - are also lost restultung eventually in near total or total vision loss. There are some forms of RP that will progress differently and the rate of vision loss varies dramatically.
What organ system is affected by retinitis pigmentosa?
Treatment for Retinitis PigmentosaBeta Carotene Treatment for Retinitis Pigmentosa Beta carotene may treat eye disease called retinitis pigmentosa Retinitis pigmentosa (RP) is a name for a large group of inherited vision disorders that cause progressive degeneration of the light sensitive membrane that coats the inside of the eye - the retina. For most people with RP, night blindness is the first symptom of the problem. Then side vision goes, resulting in tunnel vision and, eventually, central vision deteriorates. Complete blindness, though uncommon, can occur.Treatment for Retinitis Pigmentosa has long been declared an"incurable" disease by mainstream medicine, although several studies over the past two decades have shown that vitamin A may slow down RP's progression. However, many doctors balk at prescribing high dose vitamin A because they fear it will result in liver problems.But a report just presented at the recent Scientific Program of the 2010 American Academy of Ophthalmology (AAO) and Middle East-Africa Council of Ophthalmology (MEACO) Joint Meeting held in Chicago has provided new hope for RP sufferers. Researchers have found that the nutrient beta carotene (found abundantly in yellow and orange foods such as carrots and sweet potatoes), which does not carry the liver risks associated with high doses of vitamin A, can improve vision in some people with supposedly incurable RP.Last year, Dr.Ygal Rotenstreich of the Sheba Medical Center's Goldschleger Eye Research Institute in Tel Hashomer, Israel, published a study in the British Journal of Opthalmology showing that a specific form of the nutrient beta carotene, dubbed 9-cis, was effective in treating people with the eye disease retinal dystrophy which causes night blindness. Because RP usually usually begins in childhood with the first signs of night blindness, Dr. Rotenstreich and his research team decided to see if 9-cis could be helpful in retinitis pigmentosa, too. And it was.In their recent study, one third of the 29 participating RP patients showed marked improvement in Treatment for Retinitis Pigmentosa visual function while taking the prescribed oral dose of the beta carotene for only 90 days. It will take more research to find out if longer treatment would provide even more effective therapy for RP.
What safety precautions do you need to be aware of when purchasing an electric scooter for a child?
When purchasing an electric scooter for a child, you need to be aware of several safety precautions. Some of the precautions include, safety rating, age restrictions and overall speed of the scooter.
What is now treatment for Retinitis Pigmentosa in India?
As every case of Retinitis Pigmentosa is different, there is no single line of treatment. Researchers and Scientists are still working on what causes RP to detoriate so much. Doctors prescribe Vitamin A which is known to slow down the disease. Other medication may also be prescribed. In certain cases, injections are given under the eye. Surgery is also an option to treat the other effects of RP like Cataract. An artificial retina may also be helpful for some patients. The Ayurvedic treatment from Sanjeevan Netralaya is known to be the best for RP and is very effective in reversing the effects of the disease. Our doctors take the time to study and understand every patient before prescribing medication because every case of RP is unique. Sanjeevan Netralaya’s Advanced Ayurvedic Eye Care has helped over 6 lakh patients across India in effectively reversing Retinitis Pigmentosa without the use of injections and heavy medications that cause harmful and painful side effects
Retinitis pigmentosa?
DefinitionRetinitis pigmentosa is an eye disease in which there is damage to the retina. The damage gets worse (progresses) over time.Alternative NamesRPCauses, incidence, and risk factorsRetinitis pigmentosa commonly runs in families. The disorder can be caused by a number of genetic defects.The cells controlling night vision (rods) are most likely to be affected. However, in some cases, retinal cone cells are damaged the most. The main sign of the disease is the presence of dark lines in the retina.As the disease gets worse, side (peripheral) vision is gradually lost. The condition may eventually lead to blindness, but usually not complete blindness. Signs and symptoms often first appear in childhood, but severe vision problems do not usually develop until early adulthood.The main risk factor is a family history of retinitis pigmentosa. It is an uncommon condition affecting about 1 in 4,000 people in the United States.SymptomsDecreased vision at night or in low lightLoss of side (peripheral) visionLoss of centralvision (in advanced cases)Signs and testsTests to evaluate the retina:Color visionExamination of the retina by ophthalmoscopy after the pupils have been dilatedFluorescein angiographyIntraocular pressureMeasurement of the electrical activity in the retina (electroretinogram)Pupil reflex responseRefraction testRetinal photographySide vision test (visual field test)Slit lamp examinationVisual acuityTreatmentThere is no effective treatment for this condition. Wearing sunglasses to protect the retina from ultraviolet light may help preserve vision.Controversial studies have suggested that treatment with antioxidants (such as vitamin A palmitate) may slow the disease from getting worse.Several clinical trials are in progress to investigate new treatments for retinitis pigmentosa.Microchip implants that go inside the retina are in the early stages of development for treating blindness associated with this condition.It can help to see a low-vision specialist. Make regular visits to an eye care specialist, who can screen for cataracts or retinal swelling -- both of which can be treated.Expectations (prognosis)The disorder will continue to progress, although slowly. Complete blindness is uncommon.ComplicationsPeripheral and central loss of vision will eventually occur.Patients with retinitis pigmentosa often develop cataracts at an early age. Cataracts can be removed if they cause vision loss.Many other conditions have similarities to retinitis pigmentosa, including:Friedreich's ataxiaLaurence-Moon syndrome (also called Laurence-Moon-Bardet-Biedl syndrome)MucopolysaccharidosisMuscular dystrophy (myotonic dystrophy)Usher syndrome (a combination of retinitis pigmentosa and hearing loss)Calling your health care providerCall your health care provider if night vision becomes difficult or if you develop other symptoms of this disorder.PreventionGenetic counseling may determine whether your children are at risk for this disease.ReferencesSieving PA. Retinitis pigmentosa and related disorders. In: Yanoff M, Duker JS, Augsburger JJ, Azar DT. Ophthalmology. 2nd ed. Philadelphia, PA: Mosby; 2004:chap 108.
What type of mutation is usher syndrome?
Usher Syndrome,Usher Syndrone, Sustained topical dorzolamide therapy improves visual acuity and reduces central foveal zone thickness in some patients with retinitis pigmentosa or Usher syndrome, according to a study in the September issue of the Archives of Ophthalmology. In a retrospective case series, Mohamed A. Genead, M.D., and Gerald A. Fishman, M.D., of the University of Illinois at Chicago, evaluated 64 eyes of 32 patients with retinitis pigmentosa or Usher syndrome undergoing treatment with topical dorzolamide hydrochloride, 2 percent, for six to 58 months.The investigators found that 20 patients (63 percent) had a positive response to treatment in at least one eye and 13 patients (41 percent) had a positive response in both eyes. However, four patients (20 percent) who experienced an initial response to treatment had a rebound of macular cysts.
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