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Is anyone with cfs aka me aka cfids on a baclofen prescription and what is your experience of it?
Wiki User
∙ 15y ago
Yes, I have been on Baclofen for close to Ten years now. I was prescribed with Baclofen by my neurologist after it was diagnosed as a residual effect of Guillain Barre Syndrome. I have great things to say about Baclofen and the way it treated my severe M.E symptoms. I have to say that the difference you feel is very gradual. At times you may feel as if nothing is happening but persevere and you should see a positive change. One final piece of advice is to be consistant with your doses, as time goes by, with trial and error you will know what doses work for you but initially always stick to your doctor's specific doses. Hope this was helpful.
Wiki User
∙ 15y ago
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Where is The CFIDS Association?
Charlotte, NC
What are the symptoms of CFIDS?
Some common symptoms of CFIDS include incapacitating fatigue, short-term memory problems, flu-like symptoms, as well as muscle and joint pains. As the symptoms also are signals for a variety of other diseases it is best you get diagnosed from a local medical professional.
What does the frontalis do?
hi . have lots of headaches,CFIDS/ME-FIBROMYALGIA . THEA SCHLOSSER AUTHOR -FIBRMYALGIA BEYOND THE DARK CLOUD
How many Americans have Chronic fatigue syndrome?
According to the CFIDS Foundation, about 500,000 adults in the United States (0.3% of the population) have CFS
What has the author R Bruce Duncan written?
R. Bruce Duncan has written: 'CFIDS, Fibromyalgia, and the Virus-Allergy Link' -- subject(s): Chronic fatigue syndrome, Allergy, Fibromyalgia, Virus diseases
What are other names for Chronic fatigue syndrome?
It has been called chronic fatigue and immune disorder (CFIDS), myalgic encephalomyelitis, low natural killer cell disease, post-viral syndrome, Epstein-Barr disease, and Yuppie flu
Is hydrogen sulfide dangerous to health?
Yes. There is a newly published article on the subject authored by Prof K de Meierleir in which he says he believes it is one of the processes involved in developing ME or CFIDS or CFS or PVFS. There is an explanation in non-technical terms at the related link. While it may cause damage even at relatively low concentrations, at high concentrations hydrogen sulfide is poisonous. To make matters worse, at high concentrations it has no odor since it deadens the sense of smell.
What is autoimmmune disorders?
Autoimmune Disorders List (63)Alopecia AreataAnklosing SpondylitisAntiphospholipid SyndromeAutoimmune Addison's DiseaseAutoimmune Hemolytic AnemiaAutoimmune HepatitisAutoimmune Inner Ear DiseaseAutoimmune Lymphoproliferative Syndrome (ALPS)Autoimmune Thrombocytopenic Purpura (ATP)Behcet's DiseaseBullous PemphigoidCardiomyopathyCeliac Sprue-DermatitisChronic Fatigue Syndrome Immune Deficiency Syndrome (CFIDS)Chronic Inflammatory Demyelinating PolyneuropathyCicatricial PemphigoidCold Agglutinin DiseaseCREST SyndromeCrohn's DiseaseDego's DiseaseDermatomyositisDermatomyositis - JuvenileDiscoid LupusEssential Mixed CryoglobulinemiaFibromyalgia - FibromyositisGrave's DiseaseGuillain-BarreHashimoto's ThyroiditisIdiopathic Pulmonary FibrosisIdiopathic Thrombocytopenia Purpura (ITP)IgA NephropathyInsulin Dependent Diabetes (Type I)Juvenile ArthritisLupusMeniere's DiseaseMixed connective Tissue DiseaseMultiple SclerosisMyasthenia GravisPemphigus VulgarisPernicious AnemiaPolyarteritis NodosaPolychondritisPolyglancular SyndromesPolymyalgia RheumaticaPolymyositis and DermatomyositisPrimary AgammaglobulinemiaPrimary Biliary CirrhosisPsoriasisRaynaud's PhenomenonReiter's SyndromeRheumatic FeverRheumatoid ArthritisSarcoidosisSclerodermaSjogren's SyndromeStiff-Man SyndromeTakayasu ArteritisTemporal Arteritis/Giant Cell ArteritisUlcerative ColitisUveitisVasculitisVitiligoWegener's Granulomatosis
Is mononucleosis treatble?
There is no "cure" for mononucleosis. The treatment consists of getting lots of rest, drinking lots of fluids and using medications to help with symptoms, such as throat lozenges for sore throats, and acetaminophen or ibuprofen for headaches and muscle aches. In children under 19, aspirin has been linked to a potentially fatal condition called Reye's syndrome, so you should not take aspirin unless instructed by your doctor.Included in "getting lots of rest" is avoiding strenuous activities like sports. Your body needs real rest in order to recover quickly. If you have mono, you probably won't feel energetic, and it's important not to push yourself (since doing so can delay your recovery).
Is Mononucleosis a disease?
Contact with the saliva of an infected person transmits the disease, that is why it is called the kissing disease. It is really an infection- viral. There is no treatment that is effective and it takes 6 month to recover. You get fatigued, swollen lymph nodes, and cold like symptoms.
Handling Health Changes?
I've been living with Chronic Fatigue Syndrome (also known as CFS, CFIDS, ME) and fibromyalgia most of my adult life. There was a time when I would have said I was fighting it, or struggling with it, or suffering from it. These days, I look at it differently. I have by no means given up on the idea of partial or full recovery. But I am committed to living here, in the now, and living darn well, to boot. Here are some of my guiding principles for living joyfully with disability or even a scary diagnosis:Your physical condition does not define who you are. As all-consuming as dealing with physical limitations can be, you are more than the things you can or can't do. You are your ability to give and receive love. You are the unique sculpture that is your soul. You are your interests, your passions, and your distinctive point of view. You are also not your societal roles, your bank account, or your stuff. You are simply, beautifully, miraculously you, the only you there will ever be for all time. It really is enough.Any illness waxes and wanes. When we have good days, we can scarcely imagine what it was like to be so sick. Unfortunately, it tends to work in reverse, toowhen we have bad days, we can't imagine feeling otherwise. Do yourself a favor. On a good day, write a letter to your future self, the one who's having a bad day. Describe in rich detail what a good day feels like. Remind yourself that good daysor at least not-so-crappy daysdo come back around. Print it out and tape it or post it somewhere where you can easily find it, no matter how sick or stressed you may feel.There is really nothing in the world that is universally good or bad. Even the best thing in the world has a downside or two. And even the most terrible tragedy imaginable can contain a gift within it. On a good or not-so-crappy day, make a list of the good things that have come out of your challenges. I guarantee there will be more than one. Warning: on a bad day, this list may make you want to pound your head against the wall. It's okay. It doesn't make it any less true.Give people the benefit of the doubt. Operate from the assumption that they are doing the best they can with whatever they have to work with at the time. That guy at the mall who told you he wishes HE could ride the mobility scooter cause his feet hurt? He's just trying to connect with youhey, at least he didn't pretend you weren't there. And about those people who pretend you're not there? They actually think they're helping you by not making you feel self-conscious. Finally, take it easy on the people who call you brave. You are brave. And, probably, they would be too, if they were in your circumstances. They just don't know it. They believe they're telling you something uplifting. Let them.Listen to and honor your body's wisdom. It knows what you are capable of on any given dayand that has nothing to do with what's on your appointment calendar, or on your to-do list, or with anybody's expectations of what you "should" do (that includes your expectations, too). Your brain is smart enough to come up with all kinds of justifications for plunging ahead ("I'll just clean a little bit," "Everyone will be so disappointed if I don't show up," "No one can do this except me," "It's not so badI just have a small migraine.") Don't fall for it. Be still, be quiet, and listen very carefully to what your body has to say. You don't have to like itbut your life will be a lot easier if you stay within your energy boundaries.Don't give upbut do consider giving in. Crucial distinction here. Giving up is abandoning all hope that anything will ever be any different than it is in the current moment. Giving in, however, is going with the flow. What would a bad day be like if you stopped fighting it and hating it, accepted it for what it is, and allowed things to unfold organically from there? Then pain is simply painnot a life sentence. Energy depletion is simply a cue to rest. A downturn is what it isnot a predictor of what is to come. Allow yourself to simply be, without expectation, without judgment, without fear.Change your focus. If things feel scary and/or overwhelming, tighten your focus and narrow it down, smaller and smaller, until you're at a scale you can handle. On a bad day, it's easy to let your mind go spiraling into what-if scenarios and doomsday predictions. But if you can focus on what is okay in each individual momentthe softness of your sheets, the warmth of the sunshine through the window, the tiny bit if ease that comes from taking a deliberate, slow breathyou then ARE okay. One moment at the time. Conversely, zooming out and looking at a bigger picture, outside yourself and your challenges, can be helpful, too. When I'm feeling awful, sometimes it helps to coach a client, play a game with my son, take whatever step I feel capable of to make a difference in the world. Play with changing your focus, back and forth. What feels better?Stay connected to the world in whatever way you can. When I was bedridden, technology was my lifeline, my means of connecting to the world. I kept in touch with friend, family, and even carried on with my coaching practice through Skype, email, Twitter, Facebook, and the phone. Frequently the people to whom I was talking had no idea I was flat on my back in bed. Illness and pain are isolating enough without you pulling up the drawbridge and hunkering down. Reach out in as many ways as you can imagine.Ask for what you need. No onenot even your closest family and friendsis a mind reader. Sitting and seething because your spouse "ought" to know by now that you need a fresh glass of water every hour and not saying anything is as insane as going into a restaurant and expecting your dinner to magically appear without ordering. Note that asking for something doesn't mean you'll always get it. But not asking is pretty much a guarantee that you won't.Be gentle, patient, even tender with yourself. You know how. But it's funny that what comes easily with otherspreparing a nourishing meal for them, or being patient with listening to their problems, or giving them time to restcan be so hard to do for oneself. Ongoing pain and illness can lead to self-neglect and even self-loathing. Ask yourself: how would I treat a dear friend who was struggling? Guess what? That dear friend is you.
