Everyday life for someone who has Marfan syndrome is not too bad. They may be self conscious about how they look and have trouble learning new things but they can function as a normal human being in everyday life.
They cant exercise as vigorously as someone without Marfan syndrome
Marfan syndrome shows up at birth.
Yes, Marfan syndrome does affect the life span of a human. It is shown that their life span is cut on average by one third.
By being a homosexual!
Every day life is usually the same as any one else's although you can't play contact sport and you have to take medication every day
Recent advances in Marfan syndrome treatment have prolonged the life expectancy of patients considerably. Changes in how the syndrome is treated, including medication, surgical interventions, and monitoring for complications of the syndrome (eg, aneurysms), are all responsible for the increase in life expectancy. The prolongation in life expectancy can be seen by taking a look at statistics from 1972, in which the life expectancy was 32 years, and from 1996, where patients with Marfan syndrome had a life expectancy of 61 years.
Although the visual problems that are related to Marfan syndrome are rarely life-threatening, they are important in that they may be the patient's first indication of the disorder.
The Marfan syndrome is a connective tissue disorder. The Marfan syndrome is inherited and affects many parts of the body. There's no single test for diagnosing it, but people who have it often have many similar traits. Besides perhaps having heart problems, people with the Marfan syndrome are often tall and thin. They also may have slender, tapering fingers, long arms and legs, curvature of the spine and eye problems. Sometimes the Marfan syndrome is so mild that few symptoms exist. In the most severe cases, which are rare, life-threatening problems may occur at any age.
With proper treatment (medications, regular checks of the aorta, preventative surgery), a person with Marfan syndrome has an average life expectancy into their mid 70s. If a person does not know they have the diagnosis or does not do proper care, the life expectancy can be the 40s. This is why proper diagnosis is key!
This condition is much more prevalent in patients with Marfan syndrome than in the general population.
I have Marfan's Syndrome i am 18 years old and have grown up with it all my life, my life is great but have had a few bumps along the way i try not to let it affect me because you only live once and personally if you have a genetic disorder which could possibly shorten your life it makes you want to live it more, i work like a normal person but get tired more easy than an average person, i inherited the Marfan's gene from my mum she has had the aortic root replacement which i will be expected to have somewhere along my life, but i look up to her she's amazing and still fighting fit! Just a word for people what have Marfan's syndrome don't let it stop you fulfilling what you want to do in life! I am and by doing this it makes accepting the fact i have Marfan's a whole lot easier!!
Marfan syndrome can result in sudden death due to increased risk for aortic dissection or aneurysm when undiagnosed or untreated. If diagnosed and managed early, patients can have a normal life expectancy.