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What is paraneoplastic cerebellar syndrome like for a patient?
Wiki User
∙ 12y ago
For a patient, paraneoplastic cerebellar syndrome is a living hell; no joke either. This is a rare disease which not many doctors know about and most countries who have patients with the disease rely on overseas medical journals for help.
This incurable disease is so rare that there are only 1 in 2 cases every decade. The disease is triggered by an undetected tumor which is cancerous. Most doctors have difficultly diagnosing the disease at first as it is very rare to come across. Once you have the disease, you are told that you only have a short time to live. Most people live for 2-5 years, some for 6-7 years, some for 10 years or more. One person in the history of getting this lived for 35 years.
I will now base this opinion on my diseased aunt who had this horrible disease for 11 and a half years before she passed away.
When she was first diagnosed, she was dizzy. She was given the incorrect diagnosis and was put onto medication. A few months later, she was re-diagnosed and told it was paraneoplastic cerebellar syndrome. She was operated on to remove the cancer and then given chemotherapy.
What doctors do not realise is that this disease is incurable (there may be breakthroughs in the future with stem cell research). By having chemotherapy, the body begins to kill off its own nerves and thus prevents a patient from doing anything for themselves. They lose control of their hands, legs and they can no longer speak.
For my aunt, she spent 12 hours everyday in a wheelchair watching TV. She would cry everyday. For her, she was a prisoner in her own body. In the end, it was kinder for her to die rather than live in hell and have to remember it each day at her waking.
Wiki User
∙ 12y ago
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