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Sadly, the prognosis for a child with classic Tay-Sachs disease is certain death. Because the chronic form of Tay-Sachs has been discovered recently, prognosis for this type of the disease is not completely known.

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13y ago
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candycegp

Lvl 2
4y ago

Jonathan celebrated his 18th BDay on Dec 13, 2019. Many years ago, his MD said he would not live more than 2 weeks if his parents took him home to live without a Trac procedure. He has learned 2 languages, inaddition to sign language. He graduated from high school. He has not received Alternative care. His father attributes his son's long life to God's love in his heart, shared with his son. He became aware of God , after Jonathan's diagnosis, when he kept getting the thought to read The Bible. The family is bonded with a strong love and an inspiration to others,

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15y ago

Babies afflicted with the disease live to be about 5 years old.

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14y ago

It is a genetic disorder that lasts your entire life.

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13y ago

There's a girl living in Atlanta, Georgia named Rachaeli who has just celebrated her 8th birthday with Tay-Sachs. She's the longest living Survivor of the Tay-Sachs disease :)

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11y ago

The life expectancy for someone with tourettes is no different than any other person of their same ethnicity, sex, or nationality.

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13y ago

Children born with Tay-Sachs disease become increasingly debilitated; most die by about age four.

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12y ago

Even with the best of care, all children with classic Tay-Sachs disease die early in childhood, usually by the age of 5, although some do live longer.

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candycegp

Lvl 2
4y ago

18ys as of Jan 2020. Jonathan resides at home with his parents and brothers in Beaverton OR and has had no alternative medicine such as vitamins, acupunture, etc.

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11y ago

Anywhere between 2 & 4 years old

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Q: What is the longest period a persons lived with tay-sachs disease?
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