What is a treatment for tracheostenosis?
I had to have 2 surgeries so far. The first one, about 5 years
ago, was an emergency because I was not able to breathe. They took
a funnel like device and stretched open my trachea, this was a
temporary fix then I returned in 2 weeks and had the second
surgery. They made a 4 inch incision on my throat and cut out the
bad part of my trachea. Recently I can feel something in my throat
again blocking air. It is probably scar tissue. I suffered with
severe tracheostenosis for about 6 months because doctors kept
misdiagnosing me. They kept telling me I had asthma and treating me
with asthma medicine with of course no relief. I went to 2
different E.R.'s on a regular basis trying to get help to breathe.
Neither did the correct testing to find my problem so they would
just get me stable enough to leave then I would return every couple
of days thinking I was dying because I was passing out from lack of
oxygen. Finally a doctor at one of the E.R.'s I went to almost on a
daily basis for this condition was so frustrated with seeing me, he
had them rush me to Cleveland Clinic and within 5 minutes of
arrival they had me properly diagnosed. They put a camera up my
nose and down my throat and found my air hole was only at 5% open
at a complete rest. Neither Barberton Citizens Hospital or Akron
General Hospital did that. That was a horriable feeling not being
able to breathe. I literally could not get out of the bed without
my husband carrying me everywhere and doing everything for me
because I would pass out doing the easiest of tasks (going to the
restroom, bathing, getting dressed). I said my final goodbye to my
husband countless times because every time I was about to pass out
I really thought this is it, I am going to die, I just cant get air
in! The weazing of my every struggle to breathe 24/7 was actually
music to my husbands ears because he knew at least I was alive.
Best of luck to you!
Lisa
Age: 28
Ohio
