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HI - Dean from the MLD Foundation here. Clearly a call to 911 or your emergency services is the first action at a pulse ox of 70 or such a slow heart rate.

While MLD does affect the entire metabolism, and Katie's age is of concern for a late infantile onset, it could be that many other things that can be treated should be looked at by a professional. Meaning that MLD creates problems for children that often can be treated even though their systems are compromised.

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Q: Metachromatic leukodystrophy Katie is almost 5 and had this sense age 2 the other night her pluse ox drooped to 70 and heart rate to 40 is her time getting near?
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