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Augusto Odone developed a treatment for adrenoleukodystrophy (ALD) after his son, Lorenzo, was diagnosed with the disease. Lacking a medical background, he researched extensively and collaborated with scientists to understand the biochemical basis of ALD. Odone identified the potential benefits of using a specific combination of fatty acids, particularly oleic acid, to manage the condition. His efforts culminated in the creation of "Lorenzo’s Oil," which aimed to normalize the levels of harmful fatty acids in the body and slow the progression of the disease.
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How did Augusto Odone and Michalla demonstrate long-life learning?
Augusto Odone and his wife Michaela exemplified lifelong learning through their relentless pursuit of knowledge to find a treatment for their son Michael's rare disease, adrenoleukodystrophy (ALD). Despite lacking formal medical backgrounds, they immersed themselves in scientific literature, engaged with experts, and conducted their own research to understand the complexities of the condition. Their dedication not only led to the development of the "Lorenzo's Oil," a treatment that significantly improved Michael's quality of life, but also highlighted the power of perseverance and continuous education in the face of adversity. Their journey serves as an inspiring example of how determination and a commitment to learning can lead to meaningful change.
How did lorenzo inherited ald from his mother?
Lorenzo inherited adrenoleukodystrophy (ALD) from his mother through an X-linked recessive inheritance pattern. This means that the gene mutation responsible for ALD is located on the X chromosome. Since females have two X chromosomes, a mother carrying one mutated copy can pass it to her son, who has only one X chromosome inherited from her. As a result, if that X chromosome carries the mutation, her son, like Lorenzo, can develop ALD.
What happened to Jake Gimble in Lorenzo's Oil?
In "Lorenzo's Oil," Jake Gimble is portrayed as the older brother of Lorenzo Odone, who suffers from adrenoleukodystrophy (ALD), a rare genetic disorder. While Jake himself is not the focus of the film, his character represents the emotional toll and challenges faced by the family as they navigate Lorenzo's illness. The film primarily highlights the parents' determination to find a treatment for Lorenzo, illustrating the impact of the disease on the entire family, including Jake.
How ald is Vanessa Hudgens?
21!!!
What is the name of the large concert work that Howard Shore created out of the music from lord of the rings?
Six movements for orchestra and chorus ---ald
How did Augusto Odone and Michalla demonstrate long-life learning?
Augusto Odone and his wife Michaela exemplified lifelong learning through their relentless pursuit of knowledge to find a treatment for their son Michael's rare disease, adrenoleukodystrophy (ALD). Despite lacking formal medical backgrounds, they immersed themselves in scientific literature, engaged with experts, and conducted their own research to understand the complexities of the condition. Their dedication not only led to the development of the "Lorenzo's Oil," a treatment that significantly improved Michael's quality of life, but also highlighted the power of perseverance and continuous education in the face of adversity. Their journey serves as an inspiring example of how determination and a commitment to learning can lead to meaningful change.
Are there any famous people with adrenoleukodystrophy?
Lorenzo Odone was a boy with adrenoleukodystrophy (ALD) whose story was depicted in the movie "Lorenzo's Oil". His parents pioneered a treatment that helped slow the progression of the disease.
Why did the support group resist the Odone's treatment ideas?
They didn't want to get the other parents hopes up that Lorenzo's oil would save their children. In the time since the movie, it has been found that the oil works best for people who have the genetic marker for Adrenoleucodystrophy (ALD), but who have not yet developed the symptoms.
Was lorenzo ever cured of ALD?
Unfortunately, Lorenzo Odone passed away in 2008 at the age of 30 from pneumonia, which was a complication of his adrenoleukodystrophy (ALD). There is currently no cure for ALD, but research is ongoing to find treatments to manage the disease and improve quality of life for those affected.
What was the purpose of the ALD symposiums?
The symposiums are held to make people aware of ALD or Adrenoleukodystrophy. It also provided a platform to have scientists collaborate to find a treatment.
Why is a disease like ALD much more common in boys than in girls?
The most common type of ALD (adrenoleukodystrophy) is X-linked ALD. Than means that the gene for ALD is on the X chromosome. Because boys have only one X chromosome, if it has the ALD gene on it they will have the disease. Girls have two X chromosomes, so, in order to get ALD both of their X chromosomes would have to have an ALD gene. That would mean that both her father and her mother would have to have an ALD gene. Because males with ALD die before they can have children this would not happen. So girls don't get this type of ALD. There are other, more rare types of ALD that affect both boys and girls. So, all in all, fewer girls have ALD
How did the treatment for ALD really happen by accident?
bc they tried using just olive oil and it didnt work so they researched other types of oils and mixed them together and it help treat lorenzo's ALD...i think
What medical test were done to assess lorenzo condition in the movie lorenzo oil?
Lorenzo's Oil is based on the true story of Lorenzo Odone. He was diagnosed with ALD, Adrenoleukodystrophy when he was 7. Genetic testing was done. The miraculous oil does not work on patients who are already ill.
Why did the medical community resist the odones' treatment?
the parents did not want to question the doctors. They believed that the doctors were correct on their theories of ALD
Why did the medical community resist the Odones treatment ideas?
the parents did not want to question the doctors. They believed that the doctors were correct on their theories of ALD
Is lorenzo Michael Murphy odone still alive of lorenzo's oil?
Hi the real Lorenzo died 30th may 2008 one day after his 30th birthday. =================== I am pretty sure Lorenzo s illness is ALD. adrenoleukodystrophy. Has it been renamed? Pardon my typing please, my apostrphe key is not working.
How did lorenzo inherited ald from his mother?
Lorenzo inherited adrenoleukodystrophy (ALD) from his mother through an X-linked recessive inheritance pattern. This means that the gene mutation responsible for ALD is located on the X chromosome. Since females have two X chromosomes, a mother carrying one mutated copy can pass it to her son, who has only one X chromosome inherited from her. As a result, if that X chromosome carries the mutation, her son, like Lorenzo, can develop ALD.
