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It can respond to treatment. I was given 3 hours of intravenous immunoglobulin for 5 days and intensive physio. I was in hospital for 2 months. The disease affected me after a streptococcal infection 6 years ago. My treatment was successful, cost the NHS well over £5k but I am reasonably well now. This disease is often misdiagnosed.

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14y ago

What else can I help you with?