There are many organisations and support groups that can and will help you to cope with Huntington's disease. For more information about how to contact organisations and support groups worldwide, or for those in your part of the world, or for internet support groups, please see the page links, further down this page, listed under Sources and Related Links.
The number of charities focused on Huntington's disease varies by region, but there are several prominent organizations globally. Notable examples include the Huntington's Disease Society of America (HDSA) in the U.S., the Huntington Society of Canada, and the European Huntington's Disease Network in Europe. Additionally, many local and smaller charities may exist, contributing to research, support, and advocacy efforts for those affected by the disease. Overall, the landscape of Huntington's disease charities is diverse, reflecting the global need for awareness and support.
Alexander's Disease is incredibly rare so probably does not have an established support group. Research centers and some of the organizations listed in the related links have support groups for leukodystophies in general and probably could put you in touch with other families affected by Alexander's.
Yes there are several support organizations. You can obtain a list of them by visiting www.lindehc.com.
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The Celiac Sprue Association (CSA) is a non-profit organization that provides support and resources for individuals with celiac disease and their families. Its mission is to promote awareness, education, and advocacy for people with celiac disease and to improve their quality of life through research and support services. The CSA also offers gluten-free certification for products to ensure they meet strict standards for individuals with celiac disease.
Some of the organizations that offer support for people with social anxiety include Social Anxiety Support, Social Phobia, Anxiety and Depression Association of America and many more. These organizations offer help to people with social anxiety.
NAACP
Some organizations that support individuals with Cri-du-Chat syndrome include the National Organization for Rare Disorders (NORD), the Cri du Chat Syndrome Support Group, and Unique (Rare Chromosome Disorder Support Group). These organizations provide information, resources, and support for individuals with Cri-du-Chat syndrome and their families.
Aftercare in the juvenile justice process refers to the services and support provided to a juvenile after they have completed their sentence or treatment program. It typically includes monitoring, counseling, education, and reintegration assistance to help prevent reoffending. Aftercare aims to support the juvenile's successful transition back into the community and reduce the likelihood of future criminal behavior.
FC Cancer Foundation
It was for A.I.D.S and mine victims.
Air Force Civil Engineering Support Agency