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I am no doctor, but i can tell you i am 22 Years old and have recently been experiencing extreme lower Back pain. I went to a chiropractor today who confirmed via x-ray that i do indeed have spina bifida. I am still fairly new to this diagnosis so i am doing more research on this....
You can go through life with Spina Bifida Occulta, and not know it. That is the only form of Spina Bifida that doesn't cause a hole in the back.
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∙ 14y ago
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Does spina bifida last your whole life?
Spina Bifida is a lifelong disability that can never be outgrown.
What time of life are you affected by spina bifida?
Spina Bifida is a birth defect that affects the entire life. It doesn't go away. It can be treated, and surgeries and medications can help, but cannot get rid of the Spina Bifida.
Can someone with Spina Bifida have it all their life and not get diagnosis until they are in their thirties?
If they have the most mild form of Spina Bifida, called Spina Bifida Occulta, then yes, this is certainly possible. Spina Bifida Occulta often shows no outward signs and is many times not discovered until the person has an x-ray or other procedure in which the spine is seen.
What drugs are used for Spina Bifida?
In my life with Spina Bifida, I have had to use antibiotics for urinary tract infections, and I have used a medication to stop bladder spasms. Every case of Spina Bifida is unique in some ways, and not all people with Spina Bifida will need the same medications. Some may need pain medications. Some may not.
What would be the difference between someone who has spina bifida for life and someone who doesnt?
Spina Bifida is a birth defect. The damage to the spinal cord and nerves is permanent for everyone.
What is the life expectancy of people with Spina Bifida?
The life expectancy with Spina Bifida is the same for males and females; it is a normal life expectancy, as long as bladder infections and pressure sores are kept under control and the hydrocephalus (water on the brain) shunt is watched carefully for shunt failure and replaced as necessary. Spina Bifida is not fatal these days, now that modern shunts and antibiotics are readily available, at least in developed countries.
How you know you got spina bifida?
Children with spina bifida often have hydrocephalus, which consists of excessive accumulation of cerebrospinal fluid in the ventricles of the brain.According to the Spina Bifida Association of America (SBAA), over 73 percent of people with spina bifida develop an allergy to latex, ranging from mild to life-threatening. The common use of latex in medical facilities makes this a particularly serious concern. The most common approach to avoid developing an allergy is to avoid contact with latex-containing products such as examination gloves, catheters, and many of the products used by dentists. (Wikipedia) for more info go to the related lik(spina bifida) below
Can you learn how to walk if you have Spina Bifida?
Yes. I have spina bifida and I'm twenty years old and I've been able to walk completely normal my entire life with no crutches or braces of any kind and have never had any complications. Not all people with Spina Bifida can walk. It depends on the severity of the condition in the individual. But with advances in medicine, children with Spina Bifida can now receive early intervention and many are able to walk, at least with crutches or a walker, if not unaided.
How is gastrulation involved in spina bifida?
The term "gastrulation" refers to an early stage of development when the single cell that life begins from, the blastula, does not develop correctly. This may cause a loss of symmetry (amongst other things) which then leads to the development of spina bifida.
Can Spina Bifida end life short?
It is possible, but it depends on its severity. Some people with a strong case of meylomeningocele may have more lack of oxygen towards the brain, or more severe bladder and kidney infections due to permanent catheterization. Others wont. I suffer from the harshest one, but I can walk, run, etc and I have only needed two surgeries all my life, but I self-catheterise. So it really depends on how severe and birth deformed it affected the person.
What is spina bifida involved in?
The spinal bones in spina bifida never completely grew entirely around the spinal cord nerve. You don't "get" it, it is a birth defect. The defect can be minor, and not much affect the person's life, or be profound and keep the person in bed with the spinal cord exposed and vulnerable.
What are the cures for Spina Bifida?
There is no "cure" for Spina Bifida. Spina Bifida is a birth defect which has permanent effects on a person's life. It can be treated, but not cured. The treatment may consist of surgeries to correct the alignment of the legs, hips, and back, as well as antibiotics for infections, help with bladder and bowel control issues, leg braces and crutches/walker or a wheelchair as necessary, special help in schooling if needed, and a shunt, which is a tube that drains cerebrospinal fluid out of the brain if the individual has hydrocephalus ("water on the brain").
