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Those people who die may do so as a result of significant complications with tumors. Renal cell carcinomas and CNS hemangioblastomas have been the greatest causes for death in people with VHL.

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Q: What is the prognosis for people with Von Hippel-Lindau disease?
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Related questions

What is the prognosis for Von Willebrand disease?

The prognosis for VWD disease is generally fairly good and most individuals have a normal lifespan.


Can people with von willebrand disease get plastic surgery?

no


Who is Von Willebrand disease named after?

The Finnish physician Erik von Willebrand was the first to describe von Willebrand disease (VWD).


Which blood component is associated with Von Willenbrand disease?

von Willebrand disease results from inadequate von Willebrand factor. This problem is a blood clotting disorder.


What is a disease in which the blood does not clot normally?

Hemophilia is one disease in which blood does not clot normally. von Willebrand's Disease


What are the chances of a woman having the gene for von Willebrand disease if her nephew has been diagnosed with the disease?

Von Willebrand disease may be hard to diagnose. Low Von Willebrand factor levels and bleeding do not always mean you have Von Willebrand disease. http://www.nlm.nih.gov/medlineplus/ency/article/000544.htm


How is Von Hippel-Lindau disease treated?

There is no cure for von Hippel-Lindau disease. Treatment and management are often based on symptoms.


What dieses miniature schnauzers are prone to?

Liver disease, von Willebrand's disease and diabetes.


How prevalent is Von Willebrand disease?

Approximately one out of 100 people are affected with VWD, making it the most common inherited bleeding disorder


What is the genetic disorder?

Von Hippel-Lindau disease (VHL) is an extremely rare genetic condition. It is said to affect 1 in 35,000 people.


What are the demographics of Von Hippel-Lindau disease?

The condition affects people of all ethnic groups worldwide, with an equal proportion of males and females.


What is desmopressin?

A drug used in the treatment of von Willebrand's disease.