What is the survival rate of someone with a chordoma brain tumor?

Answer 1

I don't think you can answer this on with any accuracy, because everyone is different, my husband has it & was diagnosed in Feb 08 & had 80% removed, he has been very good since but I am aware it can come back at any time but as yet it has not, but I know of others who have only had 6 months before it has come back, your doctor will not give you a time frame because everyone is individual & they dont want to guess. It also depends where in the brain it is & how deep it has invaded the brain, so just keep hoping it never comes back & try & live life to the full.

Answer 2

There is an organization that is researching Chordoma and has some information on the disease on their website. They currently give a very general prognosis of 7 years last time I looked (I'm a Chordoma patient myself, diagnosed in June 2002).

There is also a Yahoo group for the Chordoma community (patients and caregivers) that you can join where we share information with each other. Don't take statistics too seriously, remember those are averages and we have many people who've been around a LONG time since diagnosis. Some over 25 years!

Someone on the group just celebrated the 27th anniversary of his radiation.

Chordoma isn't actually a brain tumor, it's a growth that appears anywhere around the spinal cord from the skull base, under the brain, to the end of the tailbone. Treatment is surgical removal of as much tumor as possible, preferably all with clean margins, followed by proton beam radiation. Sometimes they suggest irradiation before surgery as well.

You need to see a skull base specialist neurosurgeon.

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