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I had to have 2 surgeries so far. The first one, about 5 years ago, was an emergency because I was not able to breathe. They took a funnel like device and stretched open my trachea, this was a temporary fix then I returned in 2 weeks and had the second surgery. They made a 4 inch incision on my throat and cut out the bad part of my trachea. Recently I can feel something in my throat again blocking air. It is probably scar tissue. I suffered with severe tracheostenosis for about 6 months because doctors kept misdiagnosing me. They kept telling me I had Asthma and treating me with asthma medicine with of course no relief. I went to 2 different E.R.'s on a regular basis trying to get help to breathe. Neither did the correct testing to find my problem so they would just get me stable enough to leave then I would return every couple of days thinking I was dying because I was passing out from lack of oxygen. Finally a doctor at one of the E.R.'s I went to almost on a daily basis for this condition was so frustrated with seeing me, he had them rush me to Cleveland Clinic and within 5 minutes of arrival they had me properly diagnosed. They put a camera up my nose and down my throat and found my air hole was only at 5% open at a complete rest. Neither Barberton Citizens Hospital or Akron General Hospital did that. That was a horriable feeling not being able to breathe. I literally could not get out of the bed without my husband carrying me everywhere and doing everything for me because I would pass out doing the easiest of tasks (going to the restroom, bathing, getting dressed). I said my final goodbye to my husband countless times because every time I was about to pass out I really thought this is it, I am going to die, I just cant get air in! The weazing of my every struggle to breathe 24/7 was actually music to my husbands ears because he knew at least I was alive.

Best of luck to you!

Lisa

Age: 28

Ohio

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15y ago
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Q: What is a treatment for tracheostenosis?
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What is tracheostenosis?

Tracheostenosis is a condition characterized by the narrowing or constriction of the trachea, which is the windpipe that allows air to pass to and from the lungs. This narrowing can result in breathing difficulties, coughing, and wheezing. Treatment may involve procedures to widen the airway or surgery to correct the narrowing.


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