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What is the work of the IBCARF Inflammatory Breast Cancer Advocacy and Research Foundation?
Mareibc
The Inflammatory Breast cancer Advocacy and Research Foundation (now known as the Inflammatory Breast Cancer Foundation) is a group of concerned ibc activists who have come together with the knowledge we WILL make a difference in the way Inflammatory Breast Cancer ( IBC ) is perceived by both the general public and the medical community. In January 2008 this Foundation officially renamed: The Inflammatory Breast Cancer Foundation. www.Eraseibc.com
Our ranks come from IBC patients, Physicians, the Media and those affected by IBC.
In October of 2006, the first in the world IBC Clinic opened at MD Anderson's Cancer Center in Houston, Texas. Because of that monumental event, an idea began to percolate, that there was a way to reach out to the masses and lend a hand to those who needed assistance.
How could education and research come together. How could a grass roots movement best aide the public and the medical community in getting the word out that there is a deadly form of breast cancer that has gone unstudied and under-reported for too long.
Thus was the beginning of :
The Inflammatory Breast Cancer Advocacy and Research Foundation; now known as The Inflammatory Breast Cancer Foundation.
At the opening of the IBC clinic at MD Anderson in Houston Texas, Dr. Massimo Cristofanilli
and Dr. Tom Buchholz were introduced as the co-directors of the new clinic.
Together with their team, this much needed medical facility is seeing many new patients and
has begun a data/tissue repository for further research into IBC.
Reporter Michelle Esteban from KOMO TV in Seattle Washington, has done continuous
coverage, (which can be seen at their link: www.komotv.com/ibc) on the need for more
education on this deadly disease, and through her efforts the IBC clinic is seeing more
and more patients. Michelle also won two Emmy Awards for her stories on IBC in 2006 and 2007.
* UPDATE: The Inflammatory Breast Cancer Advocacy & Research Foundation has officially changed their name to The Inflammatory Breast Cancer Foundation. www.eraseibc.com
The IBC Clinic was named for Morgan Welch, Dr. Cristofanilli's youngest patient, who lost her
battle to this, the most aggressive form of breast cancer.
The Morgan Welch Inflammatory Breast Cancer Research Program and Clinic is currently
seeing new patients and is actively working on their IBC data base (NCI Clinical Trail Number NCT00477100 Inflammatory Breast Cancer Foundation
1415 S. Voss Road Suite 110-162
Houston, TX 77057
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Is there an advocacy email list for Inflammatory breast cancer?
Answerwww.ibcsupport.org is where you can subscribe to an IBC advocacy email list where you will find people who have been touched by Inflammatory breast cancer and working diligently to spread the word that you don't have to have a lump to have breast cancer. Sharing ideas, talking and writing to the media, etc Everyones input is important
What are some nice ways to support breast cancer research?
Some of the nice ways to support breast cancer research is donating to foundations such as National Breast Cancer Foundation and Canadian Breast Cancer Foundation. You can also participate in their events to help spread breast cancer awareness to the community.
What is the Komen foundation's purpose?
Komen foundations is founded by Susan G. Komen. This foundation is for the cure of breast cancer. This is a great foundation to help with research for the cure of breast cancer in women.
What are some charities Jennie Finch donates to?
The Breast Cancer Research Foundation.
Who is the woman in the fox sports breast cancer research foundation commercial?
Kara DioGuardi maybe?
Where can one donate to breast cancer charities online?
There are many campaigns online where one can donate to a breast cancer charity. Some examples include Pink Ribbon Foundation, Breast Cancer Research Foundation, and the National Breast Cancer Foundation. All of these charities are reputable, issue tax receipts and can be found online.
What governments invest heavily in breast cancer research?
The United States government is one of several governments that invest in and support breast cancer research. The United States government currently invests into breast cancer research programs through the Susan G. Komen breast cancer foundation.
Do any car donation companies benefit cancer research?
Yes, there are many different cancer research organizations that benefit from car donations, one in particular is the Breast Research Cancer foundation.
When was Canadian Breast Cancer Foundation created?
Canadian Breast Cancer Foundation was created in 1986.
When was National Breast Cancer Foundation created?
National Breast Cancer Foundation was created in 1994.
Is inflammatory breast cancer the most aggressive and least common form of breast cancer?
Because inflammatory breast cancer usually doesn't present itself with a lump, and has a peculiar growth pattern, its symptoms are not typical signs of cancer, and may appear to be something else. IBC symptoms may include: * One breast larger than the other (this could be a cup size larger) * Red or pink skin * Swelling (This might appear overnight) * Rash (entire breast or small patches) * Orange-like texture (peau d' orange) (Some women have described this as a pitted look) * Skin hot to the touch on one breast * Pain and/or itchiness ***We all have pains or itchy breasts BUT if creams or salves don't help and your breast pain is consistent please see a doctor. * Ridges or thickened areas of breast * Nipple discharge * Nipples that appear inverted or flattened * Swollen lymph nodes under the armpit * Swollen lymph nodes of the neck If one or more of these symptoms continue for more than a week, talk to a physician immediately, and find an expert with experience in treating this particular type of breast cancer. For pre-menopausal young women, feel and LOOK for changes after your period. * Source: Inflammatory Breast Cancer Foundation * For more information on Inflammatory breast cancer (IBC) please visit www.Eraseibc.com, www.komotv.com/ibc and http://tinyurl.com/f39zx which is the MD Anderson site. In October 2006, MD Anderson Hospital in Houston, Texas, opened the world's first inflammatory breast cancer clinc. If you're interested in becoming an IBC advocate, please join us at www.ibcsupport.org and subscribe to the Advocacy list. Another site to look at is the Inflammatory Breast Cancer Foundation. This Foundation was formed by people touched by ibc who want to make a difference in saving lives. www.eraseibc.com Because of the aggressive nature of this insidious disease education is what will save lives .. knowing the symptoms WILL save lives. Everyone should know there is more than one form of breast cancer! "Knowing the symptoms of Inflammatory Breast Cancer and prompt diagnosis is Vital for Survival."
Where can one find a breast cancer foundation in the UK?
Foundations often set up flyers and pamphlets within hospitals, clinics, and cancer research events. These pamphlets include addresses, phone numbers, and other contact information. Blogs can also be a good source of information for Breast Cancer-specific groups such as the Pink Ribbon Foundation.
